Data Quality/Usability Issues in e-Health: Practice, Process and Policy 09 May, 2006 09:00 AM - 04:00 PM e-Science Institute, 15 South College Street, , Edinburgh Organiser: Jenny Ure
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Any slides or other material generated as a result of this event can be found at: www.nesc.ac.uk/action/esi/contribution.cfm?Title=684

Brief description

The workshop is part of a series (Integrating Clinical and Genetic Datasets: Nirvana or Pandora's Box) co-hosted by the e-Science Centre and Generation Scotland, to look at issues of data quality and usability in the aggregation of genetic and clinical data in e-Health and e-Science. The aim is to share experience across communities in e-science, bio-informatics, genetics, epidemiology, health informatics, statistics and medical, using the Grid-enabling of genetic and clinical data from Generation Scotland (www.generationscotland.com) as a specific focus for discussion and definition of the issues that need to be addressed.

Generation Scotland is a multi-institution, cross-disciplinary collaboration creating a family- and population-based infrastructure to identify the genetic basis of common complex diseases from a cohort of 50,000 individuals, in collaboration with all Scottish University Medical Schools, the MRC Human Genetics Unit, Edinburgh; the MRC Social and Public Health Science Unit, Glasgow; the Wellcome Trust Clinical Research Facility, Edinburgh; the National e-Science Centre; the Scottish School of Primary Care and the Information Services Division within the NHS National Services in Scotland

Format of May and September Workshop.

The sessions reflect issues requiring decision-making at different levels, from initial data coding and collection practices through aggregation and analysis to alignment with other bio-banks, drawing on expertise across the Grid and the e-Health community in the UK and abroad.

In the May workshop, presentations will be short, and intended as a starting point for a focused round-table discussion to raise and map the quality issues that need to be addressed at different levels in the collection, coding, aggregation and use of very diverse datasets from and for such diverse contexts.

In the September workshop, there will be an opportunity to evaluate a range of existing project strategies against these concerns, and discuss the practical, process and policy implications of particular choices, looking particularly at the implications for designing a Grid platform. This workshop will provide a showcase for a range of existing e-Health and e-Science platforms.

Target audience

e-Health, e-Science, bio-informatics, epidemiology, health informatics, genetics, informatics, statistics and others including social science with an interest in the quality and use of aggregated datasets to support research or practice, particularly in relation to genetic and clinical data sets. The collaborators on the Generation Scotland Project are a particular target audience within this wider context.

This workshop series is supported by funding from the NeSC and the Scottish Funding Council (Generation Scotland: Genetic Health in the 21st Century

Agenda

Registration for this event is now closed. To enquire about an application or to cancel a previous application please contact NeSC Administration.

Enquiries

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